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Kaiser Permanente Website Tracker Breach Affects 13.4 Million Individuals

Kaiser Foundation Health Plan Inc. is notifying 13.4 million individuals that some of their personal data has been disclosed to third parties such as Microsoft (Bing), Google, and X (Twitter) via tracking technologies on its websites and apps. This is the largest healthcare data breach to be reported so far in 2024 and the largest confirmed healthcare data breach to date involving website tracking technologies.

Kaiser said the tracking technologies were identified during a voluntary internal investigation and they have now been removed from its websites and mobile applications. Additional measures have been implemented to prevent similar occurrences in the future. Notifications are being sent to all individuals who have potentially been affected “out of an abundance of caution,” including current and former health plan members in all markets that Kaiser operates, and individuals who used its websites and mobile apps. Notifications are expected to be issued in May 2024.

The types of data potentially disclosed to tech companies included names, IP addresses, sign-in statuses, and information about users navigated through the websites and apps. Other information was potentially disclosed based on individuals’ usage of the websites and apps, including search terms when using its health encyclopedia such as symptoms, drugs, injuries, and exercises.  No highly sensitive information such as Social Security numbers, financial information, and usernames/passwords were disclosed. Kaiser said it is not aware of any misuse of the disclosed data; however, it is possible that individuals may have been served targeted ads based on their interactions on Kaiser’s websites and apps.

The privacy violation has been reported to the Department of Health and Human Services’ Office for Civil Rights (OCR) as a breach of the Health Insurance Portability and Accountability Act (HIPAA). In December 2022, OCR published guidance on HIPAA and tracking technologies and recently updated its guidance to clarify when these technologies can be used and how they can be made HIPAA-compliant. OCR and the Federal Trade Commission (FTC) have been cracking down on the use of these technologies and sent around 130 warning letters to hospitals and telehealth companies last year reminding them of their obligations under HIPAA and the FTC Act, and the FTC has settled 5 complaints – Easy Healthcare (Premom), GoodRx, BetterHelp, Monument, and Cerebral – that alleged violations of the FTC Act related to the use of these technologies without consumers’ consent. State attorneys general have also investigated privacy violations related to the use of tracking technologies, including the New York Attorney General, who settled alleged violations of HIPAA and state laws with New York Presbyterian Hospital over the use of these tools.

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Author: Steve Alder is the editor-in-chief of HIPAA Journal. Steve is responsible for editorial policy regarding the topics covered in The HIPAA Journal. He is a specialist on healthcare industry legal and regulatory affairs, and has 10 years of experience writing about HIPAA and other related legal topics. Steve has developed a deep understanding of regulatory issues surrounding the use of information technology in the healthcare industry and has written hundreds of articles on HIPAA-related topics. Steve shapes the editorial policy of The HIPAA Journal, ensuring its comprehensive coverage of critical topics. Steve Alder is considered an authority in the healthcare industry on HIPAA. The HIPAA Journal has evolved into the leading independent authority on HIPAA under Steve’s editorial leadership. Steve manages a team of writers and is responsible for the factual and legal accuracy of all content published on The HIPAA Journal. Steve holds a Bachelor’s of Science degree from the University of Liverpool. You can connect with Steve via LinkedIn or email via stevealder(at)hipaajournal.com

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